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Get Support: CAPS Community

Connect with the CAPS community

We can help you make all the right connections.

  • CAPS point Locate other CAPS patients and caregivers
  • CAPS point Find CAPS support
  • CAPS point Share inspirational stories
  • CAPS point Find doctors who treat CAPS
  • CAPS point If you treat CAPS, become a part of the doctor finder

All the people who share the gene mutation that causes Cryopyrin-Associated Periodic Syndromes (CAPS) have a true connection. CAPS Connects Us can help people find and make connections and build support.

Welcome to our community of people connected by CAPS. Keep close by joining the CAPS Connects Us social network.

Create your profile today and get in touch with others living with this rare genetic disease. Search for people affected by CAPS in your area, or reach across the nation to offer or receive support.

CAPS community members

Below, you'll find some of the people who have joined our network and want to make lasting connections to other people affected by CAPS.

When you join, you can

  • Directly link your profile with others to stay in touch with their activity
  • Offer and receive CAPS support from across the nation
  • Use your profile to tell others about your experiences to help them better understand CAPS

Featured CAPS Connects Us members

CAPS member profile

phyphe@aol.com Female

Patient from Glen Echo, MD

"Hello, I have some form of CAPS and presently am " Log in or register to read more...

Recommend member

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CAPS member profile

rvmomof3 Female

Patient from Portland, OR

"I’m a wife to my wonderful husband, mother to three " Log in or register to read more...

Recommend member

(0) Recommended

CAPS member profile

Elle180 Female

Patient from Deer park, NY

"I've been sick for my entire life. I've been told s" Log in or register to read more...

Recommend member

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