CAPS (Cryopyrin-Associated Periodic Syndromes) Connections Start With You brings people together and provides information you need to become a stronger link in the chain of people affected by Cryopyrin-Associated Periodic Syndromes (CAPS). CAPS are a group of rare genetic diseases that affects only 1 in 1 million people.

Learn about Cryopyrin-Associated Periodic Syndromes (CAPS)
Watch a video about patients diagnosed with CAPS (Cryopyrin-Associated Periodic Syndromes)>

Learn more about CAPS diseases by sharing in one man's experience with CAPS.

Share CAPS connections

Help friends or family members connect with others living with CAPS.

Connect with the CAPS community

We can help you make all the right connections.

  • CAPS point Locate other CAPS patients and caregivers
  • CAPS point Find CAPS support
  • CAPS point Share inspirational stories
  • CAPS point Find doctors who treat CAPS
  • CAPS point If you treat CAPS, become a part of the doctor finder
  • CAPS quote

    When I was a child, I suffered in silence with this condition, known to me only as "cold bumps". It "

    — A CAPS connected patient from North Carolina

  • CAPS quote

    I am 52 and have lived with fcas for all my life. I just found out what I had 4 years ago. My two out"

    — A CAPS connected patient from Iowa

  • CAPS quote

    I am the mother of a 15 year old boy that has had symptoms of Muckle-wells since approx. 2 mths old"

    — A CAPS connected caregiver from Kentucky

Check CAPS symptoms

Find out if your symptoms indicate CAPS.

CAPS doctor finder

Find a local doctor who treats CAPS


Get a handle on the cold truth about CAPS

Learn the cold truth about Cryopyrin-Associated Periodic Syndromes (CAPS)

Do you or someone you care for experience constant rashes, fevers, aching joints, or other unexplained symptoms? Has it been happening for as long as you can remember? It could be symptoms of rare and painful genetic conditions called Cryopyrin-Associated Periodic Syndromes (CAPS).

Subtypes of CAPS
Learn about the symptoms and causes of Familial Cold Autoinflammatory Syndrome (FCAS)

The most common subtype of CAPS in the United States.

Learn about the symptoms and causes of Muckle-Wells Syndrome (MWS)

Learn what causes this subtype of CAPS, and what can trigger symptoms.

Learn about the symptoms and causes of Neonatal-Onset Multisystem Inflammatory Disease (NOMID)

Learn how NOMID can affect your child.